Hell in Paradise – Part Two – Seeking The Real Aloha

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Our family in front of the Kona Inn Restaurant in Kailua-Kona at sunset, November 2013

To read the revised version of Part One please visit here

December, 2013

I know it sounds ridiculous to complain about being in Hawaii, but anyone who has experienced bipolar depression can empathize with this seemingly narcissistic attitude. No matter where you are, it doesn’t matter – being in such despair is a malady of the spirit that turns heaven into hell.

There were moments when I was able to acknowledge and appreciate my family’s joy during their various activities, but I was leaden and ashamed that I couldn’t be like them. 

We arrived at a gorgeous beach in Kua Bay that was perfect for boogie boarding. My girls and husband Craig made a beeline for the gentle aquamarine waves. I used to love to go boogie boarding when I was a teenager in the (much) colder waves in Santa Monica, California. In Hawaii I watched my family play in the waves from afar, unable to join them.  

I baked on the sand and people-watched instead, envious of the beach-goers glued to their books under umbrellas. I was so apathetic that I hadn’t even bothered to bring a good book with me. This was the complete opposite of how I behaved when I wasn’t depressed. Normally I’d never travel more than a couple feet without clutching a riveting book or my Kindle Fire.

Each day in Hawaii I desperately hoped for my unrelenting depression to lift so I would feel the Aloha spirit I heard so much about.  While the word “Aloha” is often used to mean “goodbye”, “hello” and “I love you”, there is a deeper meaning to the word.  The website http://www.huna.org explains:

Aloha is being a part of all, and all being a part of me. I will not willfully harm anyone or anything. The earth, the sky, the sea are mine to care for, to cherish and to protect. This is Hawaiian – this is Aloha!

I was full of anti-Aloha sentiment. That attitude felt all wrong in such a glorious setting.  In an attempt to feel better, I self-medicated with food and beverages.  On a humid, seventy-five degree day I inhaled a bag of “Donkey Balls”.  Yes, they were called Donkey Balls consisting of macadamia nuts covered with multiple layers of chocolate. The balls were a temporary sugar fix and they left me feeling nauseated and plumped up.

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My psychiatrist discouraged me from drinking caffeine due to the contraindications associated with the MAOI (monoamine oxidase inhibitor, a class) medication I recently starting taking with lithium. The  MAOI, called Parnate or tranylcypromine, was known to help treatment-resistant bipolar depression and like lithium, was old-school. MAOI’s were the first type of antidepressant developed, but Dr. D. didn’t think the Parnate would send me into mania as long as I took the mood stabilizer lithium.

My meds didn’t stop me from sucking down the famous Kona coffee of the region.  

High-quality Kona coffee often sells for at least $30.00 a pound.  Once I sipped some of it I understood why java addicts with cash to burn paid such an astronomical price for these beans. When we arrived at Al’s Kona Coffee Farm rental, Al left us a bag of his Kona blend.  I made a pot of it every day on his farm, and all that tasty coffee left me jittery and contributed to my insomnia.

Parnate’s dietary restrictions also prevented me from binging on certain comfort foods which I previously enjoyed such as aged cheeses and cured meats. MAOI’s require that patients relinquish eating anything high in the amino acid tyrine. I made up for that restriction by gobbling a large bowl of granola each night – it was a temporary sugar high.  Not to mention gross. Of course the sugary cereal also worsened my sleeplessness.

I was desperate to feel better, but since I felt so hopeless, I didn’t have much self-restraint.

To complicate matters, I obsessed about mortality.  We had brought my mother-in-law’s ashes and planned to scatter them in a spectacular location.  This type of ceremony was a fitting way to memorialize her because she loved the region. I knew she would have appreciated it.  But I was sickened by the macabre fact that her ashes were hidden a mere room away from where I slept every night.

We found the perfect place to disperse her ashes. It was a reef just off the Puuhonua o Honaunau National Park.  Also known as the Place of Refuge, this park was once the home of royal grounds and a place of refuge for ancient Hawaiian lawbreakers.  Kapu, or sacred laws, were tantamount to Hawaiian culture.  (If you’re thinking of that Brady Bunch Goes to Hawaii episode you’re not the only one!)

Seriously, the breaking of kapu could mean death. A kapu-breaker’s only chance for survival was to evade his pursuers and make it to a puuhonua, or a sacred place of refuge. Once there, a ceremony of absolution would take place and the law-breaker would be able to return to society.

On the surface, this park was a gorgeous, peaceful spot. As I learned a bit about its intense historical background, that distracted me a little bit from my depression   

Near the visitor center I walked by a huge plumeria bush and I surreptitiously picked a handful of the lovely, fragrant blooms.  Upon my return to the beach once again I was a passive observer rather than a participant.  I gave a few white and yellow plumeria blossoms to my husband and daughters and then I plopped down on my towel.  They walked out onto the reef together and tossed the plumerias into the ocean in remembrance of my mother-in-law.  (Craig decided to scatter her ashes alone.)

Less than ten days after we returned home, once again my bipolar depression lifted.  How did that happen?

A few days after our return my insomnia grew even worse and I experienced two completely sleepless nights.  Even one sleepless night could trigger mania and I could end up in the hospital, so I called Dr. D.  He prescribed Seroquel (generic name: quetiapine), a heavy-duty atypical antipsychotic.  It nipped my insomnia in the bud. As controversial as Seroquel is, I’ll always be deeply grateful to this medication for helping me in a crisis.

I noticed that my depression subsided a few days after I started taking the quetiapine.  It seemed to me that there could be a connection between my depression vanishing and starting the quetiapine, so I remained on it  despite the side effects  I had of daytime grogginess and some weight gain/nighttime hunger.

I was able to laugh again – not fake laughs, but the real deal. I had fun with my girls and Craig, and I felt hope trickle back into my brain. To my utter relief, I could write again. I stopped waking up every day wishing I could escape back into an agitated sleep. I knew that life would continue to be difficult, but I hoped with every cell in my being that I wouldn’t return to the hell of bipolar depression ever again.

10/9/15 Meds Update: I’ve been taking 900 mg of lithium/night, 30 mg of tranylcypromine/Parante a day ever since Hawaii. I slowly tapered off Seroquel, but I resumed taking it last August when I became hypomanic at the Catamaran Writers Conference. Today marks the second week I’ve been off Seroquel. So far, so good, but if I find myself becoming hypomanic I’ll take it again in a heartbeat! 

Dyane is completing her memoir Birth of a New Brain – Healing from Postpartum Bipolar Disorder with a foreword by Dr. Walker Karraa (author of the acclaimed book Transformed by Postpartum Depression: Women’s Stories of Trauma and Growth).

Medications| International Bipolar Foundation & More, Oh My!

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 Lucy, stick to dog kibble!

 There’s something in the blogosphere air this week…

After months of my faithfully posting every Friday, no more, no less, these past few days I’ve been full of blogging & re-blogging excitement! I just can’t help myself, especially when it comes to the topic that my good friend Kitt O’Malley addressed today in her acclaimed blog.  Kitt’s post contains an International Bipolar Foundation post written by our our mutual friend Susan Zarit.  I also have been blogging for the International Bipolar Foundation once a month, but I haven’t tackled the slippery slope of medication yet.  What has dissuaded me in part is that bloggers aren’t allowed to mention specific medications in our posts, so it’s a good thing I have my own blog! 🙂 Please read on…

I’m on a mission to let people know about a rather “obsolete”, unsung bipolar medication combination that DID work to lift my years-long, insidious, evil bipolar depression.   I’ll tell you one thing, my friends, it wasn’t no gift! 😉

What still boggles my mind to this day is that none of the numerous psychiatrists I consulted with ever thought to mention this medication until my most recent doctor, Dr. D.  Since I was diagnosed with postpartum bipolar one disorder in 2007, Dr. D. is the best psychiatrist I’ve ever seen, bar none, and a big reason why that is the case is because he thought out of the box, he had extensive experience, he was patient, and most importantly…he cared.  

In late 2013, per Dr. D.’s suggestion, I started taking an MAOI (monoamine oxidase inhibitor) medication called Parnate, which is an old-school anti-depressant medication.   I’ve never had any anti-depressant throw me into hypomania or mania, but of course that was a concern. The fact I was taking a therapeutic dose of the mood stabilizer lithium was a safeguard in a way, but of course I needed to be closely monitored.  

There are a few different MAOI’s and they’ve been used for decades for bipolar-medication resistant patients!  So yes, again, I wonder why didn’t any psychiatrist think to tell me about MAOI’s as a possibility before Dr. D. suggested them?  I’d love your take on that one! For the record my father (who also had bipolar one) took an MAOI in the early 1980’s, but it didn’t work for him as he drank alcohol while taking it, which is a BIG BIG no no.

Parnate works especially well when used with lithium; I take 900 mg of lithium a night and I’m extremely lucky that my blood tests have all been normal and I can tolerate it very well..

I never like to give false hope when it comes to bipolar & meds, but this combination of an MAOI and lithium has been nothing short of miraculous in my life. It hasn’t been perfect; there are sacrifices I’ve made (some good, i.e. the nixing of alcohol!) but dammit – these sacrifices have been completely worth it.  Read on for more info. – and I’ll try not to blog again until my regular Friday. Famous last words….. 😉

p.s. feel free to ask me any and all questions about MAOI’s & if I don’t know the answer I’ll ask my psychiatrist when I see him on Thursday.

Kitt O'Malley

My friend Dyane Harwood of Birth of a New Brain responded to a recent IBPF blog article by Susan Zarit entitled Medications: To Have Or Not, That Is The Question! Susan Zarit of Bravely Bipolar has struggled unsuccessfully to find a medication combination that works. I can only imagine what Susan must go through mood cycling on a daily basis. Neither Dyane Harwood nor I are medical doctors. Please see a psychiatrist for psychotropic medications and to discuss medication changes. Medication of psychiatric illnesses requires the expertise of a psychiatrist. In my opinion, serious mental illnesses, such as bipolar disorder and schizophrenia, are best treated with medication by board certified psychiatrists. Supportive psychotherapists should be expert in working with our populations. We need more specialized support than, say, relationship counseling.

Dyane Harwood | Tue, 2015-03-03 09:34

Hi Susan! thanks so much for writing about this topic!

I know you wrote…

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