Hell in Paradise-Part 1/Sorry to Confuse!

Hope this brief video of me and Lucy makes sense! I’m sorry that yesterday’s 300th post was confusing. I created my WordPress blog in 2008. I only wrote three posts and then I became too depressed to write. I didn’t blog again until 2011. Once again, I wrote a couple posts and took yet another depression-related hiatus. 

I returned to blogging in December, 2013. Three time’s truly the charm…I was able to stick with it! Yesterday’s 300th post was a revised version of my very 1st blog post that I published in December, 2013. Today’s post is a revision of post #2. I’ll be publishing a couple more revised posts to complete the story. If you understand this, you get an A+! 😉 Thanks so much for reading and for your comments – I hope that you have a great day! Dyane

Hell in Paradise – Part One: Tsunamis of the Heart and Land

Our November, 2013 family trip to Kona, Hawaii was significant for several reasons.  The first reason was that we had to postpone the trip three times due to my summer hospitalizations for a bipolar depression relapse. The relapse occurred while I was tapering off lithium. I became manic and then went in the opposite direction, down to the very bottom of hopelessness.  

The second reason was that my mother-in-law had passed away a few months prior to our trip. We wanted to bring her ashes to Kona. She worked in the Kona area for over a decade, and it held a special place in her heart.

A week before we took off for Hawaii, my Parnate “miracle” had stopped working, and my bipolar depression returned. I couldn’t help but note the irony of the situation: here I was, about to visit one of the most magnificent places on Earth, and I was depressed yet again.

Once we settled in our rental in Holualoa, Kona I did some internet research. I found that some people took larger doses of Parnate than I was taking – up to twice as much.  I was able to get ahold of Dr. D. while we were there. 

(A sidenote: Holualoa means “long sled run” and is a fitting description of where we stayed.  We were located in the Kona coffee region and our rental was a stunning coffee farm high above the coast.)

Anyway, I asked Dr. D. if I could raise the Parnate up 10 mg for a total of 40 mg a day.  He gave me his go-ahead.  It turned out the dosage made me feel much worse.  I had terrible form of agitated insomnia.  

The eighteen wild turkeys who roamed the coffee plantation were noisy each night. While their gobbling sounds were cute during the day, they kept me awake and were anything but charming at night.  There were also plenty of tropical birds who loved to chirp the night away.

Meanwhile, my depression wasn’t going anywhere.  I returned to 30 mg of Parnate/day.

I knew I should’ve felt grateful for being in Hawaii. The fact that I felt so bad did nothing to assuage my guilt.   My brain synapses, which had been working so well at the beginning of the month, were stuck in a morass once again.  

I couldn’t think of anything to say to anyone during the long car trips we took around the island.  I couldn’t escape with a good book, which to me was pure torture.  

When I started taking Parnate I stopped drinking alcohol cold-turkey, as alcohol is a deadly mix with this MAOI medication, so I couldn’t turn to margaritas to relax.  (And that was a very good thing that I couldn’t drink my blues away!) 

Although I went for a thirty-minute walk amongst the coffee trees each morning, I ate tons of unhealthy treats such as chocolate-covered macadamia nuts and Kona coffee ice cream. During some fleeting moments, I was able to appreciate the grandeur of the island. I noticed my girls’ joyful laughter when they went boogie boarding, but still…I wanted a do-over!

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This photo of our girls was taken on Hilo’s beach on the Big Island.  We visited Hilo twice during our trip. Due to its history of deadly tsunamis, Hilo was particularly significant to me.

Ever since I was a little girl growing up in Los Angeles, I was very aware of the existence of tsunamis.  I asked my father if a tsunami could ever reach our home that was perched on the edge of the deep Las Pulgas Canyon near the ocean. He told me repeatedly that we would be safe, but deep down I didn’t believe him.

I had recurring tsunami dreams despite my Dad’s reassurance.  When I was older, I pored over books about tsunami history and I watched documentaries about these terrifying “harbor waves” (Tsunami means harbor wave in Japanese). I was so fascinated and obsessed by this topic that sometimes I wondered whether I died in a tsunami in a past life!

When I moved to Santa Cruz and experienced the 1989 Loma Prieta earthquake, I was so terrified that I forgot about all my tsunami lore and  did the worst thing possible in a tsunami zone – I sprinted to West Cliff Drive which overlooked the ocean. This scenic road (which is shown during the opening credits of the film The Lost Boys) was two blocks away from my apartment. I ran out of the building as soon as the first tremor ended.  I felt drawn to the sea instead of safer, higher ground.

If there *had* been a tsunami, I would have been toast! 

While in Hilo the first time, we visited one of its main beaches.  Most of the Hilo beaches are nowhere as gorgeous as the beaches on the other side of the Big Island, but their warm water temperatures are awesome.

I felt so down that I didn’t even put on my brand-new, shimmery blue Speedo suit. I plopped down on the sand while my girls and husband frolicked in the water. It struck me that I was sitting in the very spot where the devastating 1946 and 1960 tsunamis had blasted in. I became morbid, thinking that maybe it would be okay to die in tsunami after all, since I had lost hope that my depression would lift.

I continued ruminating how people must have died in the very place where I was sitting.  I’ve known for years that Hilo was the home of the Pacific Tsunami Museum, but I never thought I would have the opportunity to visit it.  The first time we went to Hilo I was so apathetic and depressed that I told my husband we didn’t have to check out the museum.  He was surprised, to say the least, as he was well-acquainted with my tsunami obsession. He had plenty of times to hear about it during our fifteen-year-long relationship.

When we returned to Hilo a second time, it seemed ridiculous not to visit the Tsunami Museum, so off we went.  I didn’t think our girls would be interested in the subject. Moreover, I was concerned the Pacific Tsunami Museum might be too scary for them, but fortunately they were up for the visit.

A spirited retired docent who had been an elementary school principal spent time with the girls.  She showed them kid-friendly exhibits about the science of earthquakes and waves. I shuffled around the rest of the museum, scared to make eye contact with anyone, wishing a wave would swallow me up then and there.  

Update 9/23/15: Now that I’m doing well, I hope and pray that there won’t be any tsunamis in our area anytime soon! There was a tsunami in our harbor in 2011, but luckily I was high up in the Santa Cruz Mountains, safe and sound.

How did I get better? I promise to reveal more in the next installment.

To be continued…

Dyane Leshin-Harwood’s memoir Birth of a New Brain – Healing from Postpartum Bipolar Disorder with a foreword by Dr. Walker Karraa (author of the acclaimed Transformed by Postpartum Depression: Women’s Stories of Trauma and Growth) will be published by Post Hill Press next year.  

Celebrating 300 Posts of Birth of a New Brain!

Photo Three

 

The Very 1st Post:

After a Two-Year-Long Hiatus, I’m Back!

Getting Better, Getting Worse & To Be Continued

 

I can’t believe it has been two years since I last posted to my blog, formerly called “Proudly Bipolar” thanks to Anthony Bourdain’s book No Reservations.  

 

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I love you Anthony! (in a platonic way)

 

I’m a big believer in the power of titles, and I felt it was apt to change my blog’s title to “Birth of a New Brain” to reflect the person I’ve become since November, 2011.  

“Birth of a New Brain” is dear to my heart.  (And brain! 😉   I love the phrase for various reasons. One little thing is that I appreciate its alliterative qualities with the “b”, but I can’t say it well if I have dry mouth syndrome! 

I came up with the title last spring. After doing extensive research, I was slowly tapering off all psychiatric medications . (9/22/15 update – I’m pro-med now! Read on and see why…)  Back then I felt my brain was changing and rebirthing, so to speak, on a cellular level. And the cells were changing. Hypomania was setting in and there would be disastrous consequences from my no-med quest. However, when I was still relatively stable I couldn’t help but love feeling so positive and creative once again, and I thought the title was imbued with my optimisim.

Birth of a New Brain was associated with a forty-page book proposal based on living with bipolar well without medication. The proposal was accepted by my former publisher and I was absolutely thrilled. (I cancelled the agreement when I relapsed with bipolar depression. Obviously my no-med concept wasn’t seaworthy.)

When I wrote the proposal I had high hopes. I secured an extraordinary British physician/author named Dr. Liz Miller, Britain’s first female neurosurgeon, to write the foreword. I discovered Dr. Miller in Stephen Fry’s groundbreaking documentary “The Secret Life of the Manic Depressive”. (You can watch it on YouTube here) Dr. Miller was Fry’s only subject who had bipolar disorder, was medication-free and doing well, so I tracked her down in London and we began corresponding.

Then I crashed and burned big-time.  I relapsed when my lithium dosage was down to 450 mg. I had to go to the psychiatric ward not once, not twice, but three times in less than two months. Once again I asked for electroconvulsive (ECT) treatments as I knew ECT was my last resort. (The first time I had ECT was in 2009 when my Dad died and I was acutely suicidal. I had a unilateral, or one-sided procedure as opposed to having bilateral ECT , i.e. electrodes placed on both sides of my brain.)  

When I relapsed, my hospital’s ECT psychiatrist Dr. L. and I agreed that I’d have bilateral ECT. Bilateral has the most intense potential side effect of memory loss. Why do it then? It can work more effectively for what I had suffered: a heavy-duty, rapid manic-to-suicidal depression state. (When my father died, I wasn’t manic to begin with; I was already deeply depressed.) It was absolutely the right decision.

I upped my lithium dosage to 900 mg. Over time I tried out a bunch of medicines for bipolar, anxiety and insomnia that gave me terrible side effects, bar none.

I worked with my new psychiatrist Dr. D. to find medication that would help me climb out of the terrifying, gripping depression that made me feel so utterly hopeless.  

Finally, in October, 2013 (my favorite month due to the beautiful autumn weather and my favorite holiday Halloween) Dr. D. suggested an old-school antidepressant drug called tranylcypromine, or Parnate.  On an interesting side-note, I recently discovered that Parnate was prescribed to this person six weeks before she died (or was allegedly murdered).

parnate-monroe

I digress.

Parnate is classified as a monoamine oxidase inhibitor (MAOI).  I’ve tried well over thirty-five medications for bipolar/anxiety/insomnia, but I *never* thought I’d take an MAOI.  This class of meds get a very bad rap because there are strict food/alcohol restrictions, and if one eats or drinks a “no-no”, one can die because of hypertension and other reasons.  

It’s also known as a “last-resort” drug for bipolar depression! Um, why hadn’t any of my previous psychiatrists brought up taking an MAOI???? Well, I suspect I know the reasons. I think they think that their patients are too dumb to follow the dietary guidelines (Stigma much? Yes, some psychiatrists look down at their patients) and they’re pressured by Big Pharma to prescribe the latest meds, certainly not an old-school MAOI that has been used for decades and actually works well. (In a small study done back in the 1970’s Parnate was found to work extremely well when combined with lithium!)

Anyway, I didn’t know until quite recently that MAOIs have helped countless people with bipolar who are considered to be medication-resistant.  

I told Dr. D. to bring it on!

I researched internet anecdotes written by those who’ve used this medication. Some people noted that Parnate worked within just a few days.  One woman recounted how Parnate lifted her ten-year-long depression in two days!

I read those accounts and thought, “They’re the lucky ones – that will never be me.”

I took my first, Pepto Bismol pink-colored pill Sunday morning.  The next morning I woke up feeling rather different.  Better.  

No way.  This has to be a dream!  I thought groggily.  

Later that morning I was feeling even better than before.  Not too much, i.e. hypomanic or manic, but I thought that maybe something was shifting in my  crappy-med-battered, shocked brain of mine.  

The next day I genuinely felt much better.  I was able to smile again, and laugh. I felt hopeful.  I felt like myself – the self I was before I ever heard or read the word “bipolar”.  I spent time with my two precious little girls and took them out places that made my skin crawl, like Toys ‘R Us and to the Night of the Living Dead mall so my older girl could get her ears pierced.

I was looking forward to interacting with people again – even the seemingly “normal” parents at the girls’ school!  I met with my longtime therapist Ina and she was amazed at what she witnessed.  She was cautiously optimistic.

Were there drawbacks to Parnate? Yes, just one, but it was intense. A daily afternoon fatigue set in (it’s a notorious Parnate side effect) but I felt that it was completely worth it compared to the benefits of the depression lifting. The majority of the anecdotes said the fatigue would go away after a few weeks. I hoped and prayed that this medication would keep working.  

Three weeks later, it was still working.  

Three weeks and a day later, I felt the depression creeping back.  

I tried denying that the Parnate had stopped working so magically, but each day my depression grew stronger.  We were on the verge of taking our biggest family vacation ever – it was one we cancelled three times before due to my bipolar depression. It was a trip for which we had scrimped and saved: the Holualoa region of Hawaii.

To be continued…

 

Dyane Leshin-Harwood’s memoir Birth of a New Brain – Healing from Postpartum Bipolar Disorder with a foreword by Dr. Walker Karraa (author of the acclaimed Transformed by Postpartum Depression: Women’s Stories of Trauma and Growth) will be published by Post Hill Press next year.